The purpose.

Shortly after our son was born, we received an at-birth diagnosis of Mosaic Down Syndrome (MDS). After a high-risk pregnancy, and many many many ultrasounds monitoring our baby, this diagnosis came as a shock. How did he go undiagnosed my entire pregnancy? Truth is, it happens more often than you’d think.

The day we found out about our son’s diagnosis, is a day I will never forget. So many emotions, thoughts, fears, and questions went through our minds. I just remember thinking to myself- I just want someone who has weathered this storm to come here- to my hospital room, and tell me it will all be okay.

Although no one came to our room to tell us it would be okay, I eventually found community. And that community welcomed us into the “club” with open arms. People in the community would tell us how “lucky” we were. & at the time I was confused as to what they meant. But now I get it. It makes sense now. We are very very lucky to have our son. We are very lucky to experience life with an extra chromosome. Because the reality is, not many people get to experience that. Not many people get to be apart of the club. Maybe like 1 in 800 parents get to… but still… that is not that many! And we are one of the lucky few that do.

The community I became apart of- inspired me to put our story out there. In doing so, I hope to spread awareness of down syndrome. I hope to showcase the “ups” and the positives related to down syndrome. I hope to find the joys in the journey. & I hope to make it less scary for those who are in the depths of a recent diagnosis.

I can be that person I wanted in my hospital room. I can tell you if you are going through a recent diagnosis and seeing this right now…. that it will in fact be okay. It will be more than okay. Your life just took a turn for the better. It will only be up from here my friend.

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